Tuesday, May 27, 2014

Joe Xavier, Director of the California Department of Rehabilitation

by Nubyaan Scott, Program Coordinator

Joe Xavier is the newly appointed Director of the Department of Rehabilitation (DOR). He recently took some time to talk with us about his background, hopes for the future, and his thoughts on Assistive Technology (AT). Take a few minutes to get to know Joe; we’re sure you’ll find it an interesting read!
head shot of Joe wearing a suit and tie and pin, smiling
Joe Xavier, Director of the CA Dept of Rehabilition

Can you share a little about your background, like your education, where you grew up, and your jobs before DOR?

I came to this country as a child, seven years old; I am one of eight siblings. And, I am the only one with a disability, which happens to be blindness. I had poor vision as a toddler that grew worse, so that by my mid to late teens, it started requiring more than just eyeglasses. And, then by my late twenties, early thirties, there was no usable vision left. I grew up and came from the Azores to California, grew up on dairy farms working with my family, and participating in ranch life. I went to elementary, middle school, and high school in integrated school settings, and then went off to college. In my sophomore year of high school the Department of Rehabilitation reached out to me, and made their services known to me. I then went through in-depth services in 1982 or so, and became self-employed for fourteen years as a result of that.  And, I have spent the last sixteen years as a civil servant. I started as a supervisor over our Business Enterprises Services Field Office. Followed by four years as an auditor, if not the only, one of the first blind Auditors in the State of California. Then, three years as a Section Chief of our Business Services Section. And, the last six-plus years in an Executive capacity with the Department including Independent Living, the Specialized Services Division, and today the Director of the Department.

It’s my understanding that you didn’t speak much English when your family came to the United States. So, I was wondering whether there was any Assistive Technology that helped you to learn English.

When you say, “much English,” you’re being very kind, because I spoke no English when I came here. On the Azores the language is Portuguese, so my first language is Portuguese. And, when we came here, we landed in Sebastopol, which is just outside of Santa Rosa. There was no one who spoke Portuguese in the school that I went to; or any language that I could understand. And, for your readers, what they probably don’t know is that I’m close to 102 years old.

Nubyaan: You don’t look a day over 90!
(laughter from both)

Joe: So, being that I am fifty-four years old, this is way before Google or all of the internet access that is available. So, back then, there really was next to none of the resources that we think of today; especially, as we talk about assistive technology. So, there was not any technology that I was able to take advantage of.  Although today there is quite a bit of it that could be used for someone who is learning English as a second language.

      Is it true that you had some difficulty with school in your early years, but, then later on you excelled? And, in compound with that, was there any assistive technology that helped you to excel in school? And, by “assistive technology,” I don’t necessarily mean literal technology, the way we think of it now. When we talk to everyday consumers about it, we try to phrase it as “anything that is an addition to your life that helps you with it.” So, any kind of devices or tools.  

   Yes. And, I think that’s a good explanation. I did have a difficult time with school, and it was a language barrier. I was held back a year because of my language barrier, and then I actually skipped a year once my language caught up with me. Because I had poor eyesight during that time, playing sports was something that was very difficult to do. But, one of the things that I got to do was to play softball. And, the position that I got to play on the softball team was pitcher. And, I was the only pitcher that wore a catcher’s mask. So, you can call that in a manner of speaking, a piece of assistive technology. Which essentially allowed me to overcome the barrier of not being able to see the ball coming at me. So, in the event that it did come at my face, it would at least bang off of the mask first. So, it was pretty creative at that time for coaches and teachers, and whoever came up with the idea. I was the pitcher, I had a catcher’s mask on, and I brushed a lot of people back off of the plate. Which means they weren’t sure if they should stand in there and hit the ball or back up. It worked!

At what point in your life did you learn about assistive technology in the formal sense; the way we think about it now?

When I started in the end of junior high, beginning high school; when they actually diagnosed what the cause of my poor eyesight was. Then, I started getting exposure to assistive technology. Some of the first technology that I used was magnifiers; I had a lot of different magnifiers. I had a couple of magnifying bars that were flat on one side and beveled on the other, so that they wouldn’t distort the print too badly. You had a six-inch or a ten-inch magnifying bar, and you’d essentially slide it down the row of print on the paper. So, that was my first exposure to the various pieces of assistive technology, and it progressed increasingly from there.

What do you think was your first use of assistive technology before you really knew what that term meant?

The catcher’s mask was clearly one of those; before I would even identify that as “AT” today. One of the things that I did on the dairy farm was drive farm equipment around. One of the pieces of technology that I used to be able to keep the tractor where it needed to go was driving the tractor down the ruts. So, I literally had just developed a since of knowing when the tractor was navigating off of those ruts. That was very early on.

Are there any pieces of assistive technology that you feel helped you on your path to citizenship?

Well, becoming a citizen occurred very late in life compared to when I arrived here. So, I came here as a child at the age of seven; I didn’t become a citizen until my early twenties. So, at that time, the citizenship path was very simple for me because I had already overcome the language barrier. The technology that I was using at the time that I became a citizen was largely magnification. And, the magnification that I was using at the time was closed circuit T.V.s; what we now refer to as CCTVs. And, I started using those in 1982 or so. The first one I had was about a 9-inch little portable screen, and it grew from that into your full 14-inch platforms.

Can you tell me a little more about your relationship with the Department of Rehabilitation over time?

Achieving employment was the key and the path to independence for me. What’s unique about my experience with the Department of Rehabilitation is that two months ago I was sworn in as the Director, and I had the great honor of having present at the ceremony, the two counselors who worked with me as a consumer in the mid-seventies and early eighties. And, I think it speaks volumes to the quality of the individuals that we hire, the counselors that we have, as well as the impact that they have on the lives of the people that they work with.

What assistive technology devices do you think have helped you most during your time at the Department of Rehabilitation?

I think that the assistive technology that I’ve used has been a generational expansion. So, let me explain. When I talked about using the CCTVs and when my vision decreased to the point where those were no longer useful. They would serve as a beacon of light, in other words, I knew if they were on or off, but that was about as valuable as they were. I started moving into use of screen readers, and I started moving into use of laptops. And, then I started moving into use of electronic note takers. And, the electronic note takers evolved from very cumbersome, very archaic, to moderate, to today as I sit here talking to you, my electronic note taker is an iPhone with an app, and a Bluetooth keyboard. Each of those evolutions of technology brought an increased ability to be efficient, and, an increased reduction of the footprint that the AT takes up. So, a laptop for example has a much larger footprint, and is much heavier than an iPhone. And, of course the applications have evolved, the screen readers have evolved over time, Braille displays have evolved over time; they’ve gotten smaller, faster, and more powerful. Society as a whole, slow as it may be, has made progress to ensure that applications that are in general use, such as the Microsoft Office products, are increasingly accessible. So, it’s not a piece, as much as it is an evolution that has brought about the efficiency and effectiveness, as well as my ability to do the work that I’m doing.

Have you ever created your own assistive technology?

Oh, yeah quite a bit. So, at home I have a garage full of saws, drills, routers, all kinds of woodworking tools, and metal cutting tools. And, I am very notorious for having fashioned different ways of getting the work done. One example of that would be that quite often I would need to measure a piece of wood or metal that I’m going to cut. But, I needed it to be the length of the space that I was going to fit it into. So, I would go to Home Depot and buy a long, thin baseboard which can come in different lengths. And, using a binder clip, I could wedge that into the space that I wanted to measure, use the binder clip to slide over to the size that I wanted, take that back, lay it on the saw, lay it on the piece of wood that I was going to cut, and cut it. That’s just an example of an assistive technology. I do a lot of electrical work around the house. And, one of the things that you really need to be aware of when you’re doing electrical work is the distinction between a black wire and a white wire. What I would do is get a piece of electrical tape, and once I identified which the black wire was, I would put that piece of tape around that black wire. Then, when I went to wire, unwire, or rewire, I didn’t need sighted assistance to identify the colors of the wires because they were already marked. So, each of those types of things, in effect becomes a piece of technology. If you step back and think about it, the purpose is to overcome a barrier. My barrier was the ability to see the color of the wire, so the piece of tape on the wire overcame that barrier.

What role do you think assistive technology plays in the services that the Department of Rehabilitation provides to its consumers?

I think the role that the assistive technology plays is largely, if not wholly driven by the individual. The Department is in a position, and has the practice of providing the assistive technology that is necessary for each individual to accomplish their plan for employment.  However, it’s what the individual does with the assistive technology that will make the difference. Providing it is just a small part of that equation.  Too often, individuals expect to get a piece of technology, and that it will solve all of the needs that they have. The technology will not solve those needs; it’s the use of the technology that will solve those needs. And, as it is with anything that we want to be good at, we need to invest time in it. And, I have invested a considerable amount of time learning the nuances, the practical and the difficult tasks of whether it’s a software application, or whether it’s a piece of hardware that I need to learn how to use.  And, for technology to be effective, we also as individuals have to understand that what’s at hand today is what you get to use, and while it may improve tomorrow , if you keep waiting for tomorrow, you will be waiting a long time. Because, technology is not perfection; it’s progress.  If you think about the description that I provided, in terms of the evolution from desktop to laptop, to note takers, etc., that’s all progress, not perfection. The iPhone and the iPad today are not perfection compared to what we’ll see a couple of years from now. I think it’s reasonable to conclude that more and more of the “mainstream technology,” will be fitted or created in such a way that meets the disability needs of many. And, the iPhone is a classic example of that. Built into every single iPhone is now a screen reader, magnification software, and other pieces of software that will provide beneficial use for the deaf and hard-of-hearing population. There are also pieces built into the iPhone that will provide assisted use for individuals with mobility dexterity and cognitive disabilities. And, I think as that grows, where technology will embrace that diverse user approach, then there will be less of a need for the after-the-fact modification, because those are being thought of and built-in upfront. Society grows, technology advances, and successful companies continue to do the same.

What do you hope for the future of assistive technology?

The ideal for me would be that there is no need for it. That both in society and in just general practice, that we have come to a point where the functional, operational requirements of individuals with disabilities is so integrated that we no longer think of it as assistive technology. At the end of the day when we talk about equality, we truly will have achieved equality when we don’t need to call out assistive technology, or physical access, or programmatic access; it’s there.

I think it’s safe to say that every leader has their own style of leading. What do you hope to bring to the Department of Rehabilitation, as its new leader?

Well, what I can share with you are some of the things that I bring to my everyday responsibilities. Ensuring that what we do is very clearly focused on that end-result, on the purpose, the outcomes for which we exist. The inclusion of stakeholder and community in a meaningful collaborative partnership in informing our practices, our policies, and our services. Ensuring that we have both the management and the leadership in place that has the depth of understanding and the experience and the breadth of appreciation to blend the needs of our community, of our programs, with the functions of government, unite them, and point them in the same direction. And, of course as it is with any organization, the responsible and responsive allocation of the existing resources that we have, that is done in a way that is equitable, and that does the greatest good for the greatest number of people.  And, recognizing that we don’t have either enough money or enough people, but that we must continue to find ways to do better with the resources that we are given.

Tuesday, May 13, 2014

Disability Resource Fair in Sacramento - Wednesday, May 21, 2014


What are you doing on Wednesday, May 21st?

picture of the capitol with a dozen resource booths with tents and lots of people milling around them
If you can make it to Sacramento, come join the disability community for the 11th annual Disability Capitol Action Day (DCAD). DCAD is one of the nation’s largest and most diverse cross-disability annual days of unity. Recognizing the important issues facing people with disabilities and their allies in 2014, DCAD's theme is “The Time Is Now.” People from every corner of California will come to march in solidarity, share resources, and listen to passionate speakers. We will also discuss important issues like the In-Home Supportive Services, building accessible communities for all and the potential of the disability vote in the 2014 elections.

For over a decade now DCAD has continue to grow. Last year we welcomed over 2500 people and the Disability Resource Fair had more than 45 exhibitors there, sharing accessible resources, educational tools and products.

The Disability Resource Fair has some very exciting new exhibitors this year, including Innovations Health Devices, WHILL, Inc., Saltillo and the Prentke Romich Company, just to name a few. 

Innovations Health Devices will be demonstrating the exciting JACO.  JACO is an assistive robotic device that gives you the power and the freedom to do for yourself.  Check out this video of this robotic arm in action!


Innovations Health Devices will also have a wheelchair accessory, the Wijit, that improves mobility and reduces injury.

Also at DCAD will be a demo of the WHILL - a personal mobility device that traverses over sand, snow, gravel, and woodchips, and has a sleek and narrow design. Read our  blog about the amazing WHILL by clicking here.
 
Both the  Prentke Romich Company and Saltillo Corporation will be at DCAD to demo the latest and greatest in Augmentative and Alternative Communication (AAC) devices. AAC is a term that is used to describe various methods of communication that can help people who are unable to use verbal speech to communicate. AAC can benefit a wide range of individuals, from a beginning communicator to a more sophisticated communicator who generates his own messages. 
 
Be a part of the DCAD 2014 team on social media! You can like us on FACEBOOK, follow us on TWITTER or share your DCAD story on TUMBLR and YOUTUBE. On all of our social media outlets we will be asking disability community members to complete this personal advocacy statement: “The time is now for …”

DCAD is for everyone who shares our common goal of increasing access and equality for people with disabilities. Please invite your friends, family, neighbors, colleagues and caregivers…and don’t delay, the time is now to join us today!

Thursday, May 8, 2014

Tips for Planning an Accessible Meeting

by Rosemarie Punzalan, Program Coordinator

In-person meetings are great ways to network and collaborate with peers. They give participants a chance to connect on a more personal level than even the most interactive online platforms allow. They are a great way to share resources, as well as give an opportunity to brainstorm ideas with colleagues. However, it is important to  make sure that every individual can participate fully in the entire meeting. Namely, it is extremely important that your meeting is fully accessible to all. A first step is to make sure you and all of the meeting's planners are familiar with the Americans with Disabilities Act's Accessible Meetings document.

image that has the symbols that represents for public large print, braille, sign language, disability, closed captioning, TTY, blind and hard of hearing
The meeting space should provide access to all attendees regardless of disability. Total accessibility includes not only the physical access of the building, room and parking lot, and the public transportation available, but also that other accommodations be made available by request. This could include the print materials being available in alternative formats such as large print, Braille, or on CDs for those that use screen readers. Additionally, a person may request live or closed captioning of the presentations. You should also be prepared to have the handout materials  in other languages such as Spanish or Chinese. Additionally, another accommodation that could be requested is a language interpreter that uses another language or American Sign Language.

Below are some basic tips to keep in mind when preparing for an accessible meeting:
  • The indoor and outdoor routes and pathways to the site are accessible for someone who uses a cane, scooter, walker, wheelchair, or has a service animal;
  • The signage wall mounts include Braille;
  • The bathrooms are accessible;
  • The meeting room's seating area is wide enough for pathway travel for someone who uses a wheelchair or scooter, etc. It is best to ask for floor plans of the room in advance of set up;
  • Ensure the equipment such as a personal computer and/or laptop, assistive listening devices, microphones, projectors, TV decoders, and teleconference phones are available and in working condition; and
  • Print materials are available in alternative formats as well as in other languages.

Below are some additional resources to learn more about ADA and planning accessible public meetings:


· Information and Technical Assistance on the Americans with Disabilities Act - http://www.ada.gov/

· California Department of Rehabilitation's Planning Accessible Public Meetings - http://www.rehab.cahwnet.gov/DisabilityAccessInfo/Planning-Accessible-Public-Meetings.html

· Independent Living Resource Center of San Francisco's Accessibility for People with Disabilities: Practical Tips Word Document - http://www.communitychoices.info/adrc/docs/ACC-TIPS.doc

· Independent Living Resource Center of San Francisco's Accessible Basic Guidelines Word Document - http://www.communitychoices.info/adrc/docs/ACCESSIBLE MEETINGS (2).doc

Do you have tips for making sure your meetings are fully accessible to all?  Let us know by typing in the comment section below.